Appleton, R., Loew, J. & Mughal, F. (2022). Young people who have fallen through the mental health transition gap: a qualitative study on primary care support. British Journal of General Practice. BJGP.2021.0678. DOI: 10.3399/BJGP.2021.0678
This study is- to the authors' knowledge- the first to explore the experiences of young people and their parents who accessed mental health support from primary care after falling through the gap post-CAMHS. Consequently, the authors qualitative study set out to answer the following questions:
- What are the experiences of young people who have fallen through the gap and their parents in receiving primary care support for their mental health?
- What are the barriers and facilitators to accessing mental health care in primary care for young people who have fallen through the gap?
This research is part of a wider study across 8 European countries, this sample comprised 15 young people (aged 12-15) and 15 parents who were interviewed either in person or via telephone. Following the interviews, transcripts were transcribed and analysed using reflexive thematic analysis. This gave rise to three themes: unmet mental health needs, disjointed care, and taking responsibility for the young person's mental health care.
Abstract
Background
Owing to poor continuity of care between child and adult mental health services, young people are often discharged to their GP when they reach the upper boundary of child and adolescent mental health services (CAMHS). This handover is poorly managed, and GPs can struggle to support young people without input from specialist services. Little is known about young people's experiences of accessing mental health support from their GP after leaving CAMHS.
Aim
To explore the experiences and perspectives of young people and the parents/carers of young people receiving primary care support after CAMHS and to identify barriers and facilitators to accessing primary care.
Design and setting
Qualitative study with young people and parents in two English counties: London and West Midlands.
Method
Narrative interviews were conducted with 14 young people and 13 parents who had experienced poor continuity of care after reaching CAMHS transition boundary. Data were analysed using reflexive thematic analysis.
Results
Three themes were identified: unmet mental health needs, disjointed care, and taking responsibility for the young person's mental health care. Barriers included the perception that GPs couldn't prescribe certain medication, anxiety caused by the general practice environment, and having to move to a new practice at university. Young people's positive experiences were more likely to include having a long-term relationship with their GP and finding that their GP made time to understand their needs and experiences.
Conclusion
GPs could help to meet the unmet needs of young people unable to access specialist mental health services after leaving CAMHS. There is a need for comprehensive handover of care from CAMHS to GPs, which could include a joint meeting with the young person and a member of the CAMHS team. Future research should focus on interventions which improve continuity of care for young people after leaving CAMHS, and collaborative working across community mental health services.
Young people who have fallen through the mental health transition gap: a qualitative study on primary care support [paper]
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