Every week, 5 new pathologies affecting less than 0.2% of the population are discovered in the world. In 2013, more than 7,000 different rare diseases were identified in France. 80% of these diseases are genetic in origin, but there are also infectious diseases.
These new diseases, called "rare" or "orphan", are of concern to us and, in order to raise public awareness of their existence, events are planned in 34 countries every February 29, a rare day if ever there was one.
With 30 million people affected throughout Europe, so-called rare diseases are becoming commonplace... a worrying paradox. This rise in importance has prompted 34 countries on the old continent to celebrate the first European Rare Disease Day since 2008.
Aimed at the general public, this day has three objectives
- to make the European public aware of rare diseases and their impact on the lives of patients
- to disseminate information on these diseases
- to strengthen European collaboration in the fight against this scourge.
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